Friday, June 17, 2011

dreaded appointment update and sick kids

Yeah, I know the appointment was about a week and a half ago. The appointment went much better than I excepted. As you can see in my last blog post I wasn't looking forward to this appointment!

We got there and they had a regular parking area (not covered) and I got the only spot open at the time. They seemed OK with the fact that I brought 3 additional tag-alongs. Not only that, they even took all 4 kids to an "activity room" while I talked to all the different people. Imagine, quiet time while trying to talk to a kids doctor. Pretty much unheard of.

I saw all the people at the same time, which is very smart if you ask me. There was an MD, OT, dietitian, psychologist, and a nurse practitioner. They asked lots of questions and all jotted down their own notes. I felt kinda like an interview!

The OT wanted me to bring foods Max likes and some he doesn't like. I did that. She played "food scientist" with him. They had a piece of paper listing their assignment (so to speak) and were supposed to use the senses to discover the food. First they looked at the food and noted what it looked like (shape or color or whatever), then smell, touch, TASTE and what sound it made while being eaten. Max was NOT going for that trick. No way, no how! So the OT and dietitian got to see his reaction to that experiment. I am supposed to that 5 times a week. I have to admit I have not followed through with that yet. I know, I know! We need to at least try.

The dietitian said she really wanted him to take a Flintstones Complete vitamin. The last dietitian told us that has well. He will take the gummy bear vitamins but that is it. After the last lady recommended them (Flintstones) to us I bought a bottle to try. Max will not even touch them. My other kids don't like them either. To me they are very sweet and have a strong iron taste. So yeah, not very yummy compared to a gummy vitamin! This lady recommended crushing one up and mixing it with applesauce. Maybe even try to mix only 1/2 a pill to start with. I have to say that has been successful... so yay! That was most important to start with from the dietitians viewpoint. Have I done it every day? no, but it's a start. I even do a full pill. I mixed with applesauce, and tried one night using apple juice. Didn't work that well with juice. It didn't dissolve but he still drank it and even asked to get it refilled once. Which is good since there were still chunks in the bottom! Today I mixed with yogurt and it was all good.

Another suggestion is the 'just noticeable difference' to preferred foods. I really was not sure about that one. Max refuses anything that LOOKS different. Take chocolate for example... he likes Hersey bars, kisses and chocolate eggs. But NO other chocolate (Easter bunny or any other shaped chocolate) he also doesn't like the mini Hersey bars. They look too different I guess. They suggested maybe change his bagel type. Max eats 1/2 a toasted onion bagel for breakfast, usually every morning. At least during the school year... (summer changes to whatever!). They recommended sesame seed but nothing with chunks (like blueberry). I wasn't so sure. So one morning a fixed a sesame seed bagel but it was the bottom half.. the side with very few seeds. But the taste would be different. He ate it with no complaints. So the next day I gave him an onion one again then the day after I braved it and fixed the top half of that sesame seed bagel. I tired to brush off a few of the seeds but not very many came off. I gave it him and acted no different. I watched from a distance out of the corner of my eye. He ate the whole thing!! I know, one bagel type to another seems like no big deal. I see it as a step though. Baby steps, right?

I still need to mix it up more for him. The store has hot pockets on sale this week. He will not eat them and I really don't even buy them b/c it is not very healthy food. However, the people at the clinic suggested other pizza type foods that are different to him. They asked about hot pockets and kinda suggested trying them. I had Max help me pick a few out. One is a cheese stuffed crust pizza type of thing. Not sure he knew we was picking them out for himself yet. I still need to try them. You know the picture always looks SO much different than the actual product. I will have to have him agree to try what is ON the box and have him help fix it since it will look different. Hopefully that works. Not that I want him eating Hot pockets but it is something different. Something to hopefully expand on.

The OT there said every one of her patients have started eating new foods but one. I should have asked if that one had Down syndrome!!

Another suggestion was to not offer the same foods at the same time of day for 2 days in a row. I told them I don't think that would matter. As long as a food is on HIS approved list he will eat whatever at anytime of day. They suggested yogurt one day for breakfast but the next day be something different like a bagel. I told them he asks for pizza every day for breakfast, he just doesn't get it! Really, he fine eating bagels for breakfast or dinner or snack or whenever. Same with pizza, spaghetti and other foods on HIS list!

We follow up August 1st with that clinic. However, he now has an OT appointment to work with food at a closer children's mercy clinic... On Monday. My husband says I shouldn't go, that it is a waste of time and money. They aren't going to do anything I can't do. I still plan on going. Pete says just fix one meal for everyone and everyone has to eat the same thing. After a few days they will all be eating it with no problems. I don't think that would work, and well, I'm not going to try it. Max will just eat something else later that he wants. yeah, I know, don't let him. But to make it short.. It's not going to happen. If you know of any study done to try and prove MY point, please do share!! I just don't think some major change like that would work.

The clinic we went to has a certain criteria they use to screen out patients. First it is called the Special Needs Weight Management Clinic. So, obviously they have to have some type of special needs. Second they have to have a BMI of 95% or above. I guess at the last dietitian place his BMI was 95%. Which just seems like such a crock to me. His BMI is 21, well within the normal limit. OK, so yeah, he is a little chunk and possibly a little over weight but his BMI is normal people. However, compared to other 9 1/2 year old boys, who are generally tall and skinny, he has a high BMI. At this appointment though his BMI went down. Apparently he grow an inch or 2 and has maintained the same weight. He no longer qualifies for this clinic. Which I see as a good thing personally.

Whew, that was long!

On another note, my kids are all battling some virus or something! Ike started with a high fever spike Weds evening. By Thursday he seemed better. Sam and Joe then spiked fevers. Whatever it is must take a high temp to kill it off. Joe's fever was around 103 and Sam's was 103 -105. I alternated Tylenol and ibuprofen for her. First time I have ever done that for any of my kids by the way. I'm sure Pete would have freaked out if he knew her temp was that high. He tends to freak about things like that. Whereas I know the fever is killing off the bad guys and the body can take care of itself. What would the doctors do? Well at the ER take my $200 and then send me home telling me to rotate the meds (like I was doing). Today (Friday) she was still sick but her fevers were lower, maybe 102-103. Same with Joe, a little better. Sam said her throat hurt (so did Joe but he acted pretty much fine). So I made an appointment with the doctor at 3:30. This was to see if maybe it was strep. Max and I were fine but we both have no tonsils! Around 2:00 Sam started acted like herself again. Max then took a turn for the worse and sat on my lap with his head down. I had him go lay down. He did for a few minutes but came back out and sat in a computer/desk chair. he was falling asleep while sitting there so I went and laid down with him for a few minutes (after giving him meds). Sam didn't want to go the doctor to get a swab crammed down her throat, hmm, I wonder why? Plus she acted fine so I canceled the appointment around 2:30. Around 4 or a little after Sam was acting sick again. And still is (at 9:30 at night). Joe acts fine but still has a fever. Max... well, Max is back to himself again, picking on siblings and scaring the crap out of the cat. Ike has acted fine all day but feels a little warm and fell asleep in the late afternoon (and still sleeping)

Whatever it is, I hope it all disappears by tomorrow!

Monday, June 6, 2011

dreaded appointment

Max has an appointment this afternoon that I am dreading!

I was told to allow 2 hours for the appointment. 2 hours!! If it was just Max and I, I think I could handle it better. However, Pete started a new job...today. The neighbor had plans for the day so I am stuck taking all 4 kids with me. grrr. Pete said I should have asked his parents to come up. I probably should have. But it's too late now.

The appointment is at the Weight Management for Special Needs. It is in downtown Kansas City. It is part of the Children's Mercy Hospital but not IN the hospital just right next to it. I hate driving down there. I'm not that familiar with the area to be driving around trying to find my way. I am hoping the GPS helps out a little. Another reason I hate driving to the unknown building is parking. The hospital itself has covered parking. We have a conversion van with a high top. It is too tall to fit in parking garages. So at the hospital they have me park in a special spot. They have about 8 or so special spots for high/big vehicles. I am not sure about the clinic I am going too. They do have a covered parking I know. I told them on the phone I drive a tall vehicle. I guess I'll find out when I get there!

The paperwork says, "please make arrangements for other children in your care while you attend this appointment." Well, I already talked about that. I hope my other 3 behave and have patience. Lots of patience! Same for me.

I am also supposed to take 2 food items that Max will eat and 2 he will not eat. This should be fun! Actually that is about the only reason I am going. He is SO darn picky. I am hoping someone there has some magic power to have him eat something new and different.

The reason for this appointment all came from his high cholesterol from last year. I had it re-tested 6 months later but it was still high. I know this is all from Pete and I. But I don't think the doctors care. From there we saw the nutritionist. I am pretty sure I blogged about that but right now I can't find it. I think Blogger ate it! She was no help. So this place is our 2nd place to visit. Max didn't qualify for the eating/feeding clinic. Which really is my main concern.

I keep thinking he has to outgrow this. He will want to try different things. But really, I'm not too sure. I asked a friend about her son who also is a picky eater and went through feeding therapy. News did not sound good. She even met someone that has a son (adult son) who only eats like 3 things.... and that is it!

Oh Max, oh Max, why do you have to be SO stubborn and picky??

Saturday, May 14, 2011

Where does the time go?

It's already been over 2 weeks since I posted. So maybe I should just consider myself a radium blogger!

Last week Sam and I made some 'blobber' for science.

It was SO easy to make. It is really cool stuff too. It is almost like silly putty.

Different colors have different stiffness to them so we could see what solution would be better at different activities (bouncing, blowing bubble, etc..)

The yellow was the best for bubble blowing...

I'm sure you're all dying for the recipe, right? In case you didn't see it on my Facebook, I'll post it here too.

Blobber:
1 Tablespoon white glue
1/2 teaspoon borax
1/2 cup water
food coloring (optional)
2 paper/plastic cups

1. Dissolve the borax in the water.
2. pour the white glue into another cup. If you would like, add about 4 drops of food coloring.
3. add 1tablespoon of the borax solution to the glue and stir with a stick or spoon.
4. take the mixture out of the cup and knead it with your hands for several minutes.

Easy peasy. I made double patches. 2 tablespoons of glue then added 2 tablespoons of the water borax mix.

To test the blobber with different solutions try adding different amounts of borax to the water....

red... 1 tsp
blue... 1/2 tsp
yellow... 1/4 tsp

Have fun!

Thursday, April 28, 2011

She is now an adult

Today, April 28, is my dog's, Baby, 18th birthday. Joe said that she is now an adult!
18 years old! wow, she is old. She can barely hear, not sure she can see a thing and she sleeps all day. I'm sure this is her last birthday. However, I say that all the time... this is her last Thanksgiving, last Christmas, etc... but she's still kicking. You can tell she is one very old dog though! And you know what, she used to be completely black back in her prime.

Happy 18th birthday to Baby!


Wednesday, April 27, 2011

swings...

we finally got our swings pretty much done for the kids

We put 2 swings in. We are still looking for the perfect connector for the swing to chain. The ones we want we can't seem to find that are big enough for the swing but small enough for the chain link. What we have right now works but we just want to find a replacement for them. Then we also will cut off the extra chain. We left extra chain until we knew that the length was all good.
With the swings being SO high, you can really get some height...
We have one more spot for something. Another swing, climbing rope/wall or if Ike gets his wish a fireman pole!!

Now if the weather in Kansas would warm up just a tad bit we could enjoy them a little more.

Friday, April 22, 2011

kids will be kids

The kids thought it would be fun to stamp their feet and hand prints on paper and display them on the wall....

My hallway looks like that. The entire wall is filled with their masterpieces (well, as high as they can reach!). They slowly get ripped down. Don't worry they will all be replaced with new masterpieces.



Kids are messy, we all know that. My kids, I believe, are some the messiest around. At least 3 of them, Max is rather tidy. Except for one thing....

I wonder if they ever get that toothpaste ON their toothbrushes. They get it everywhere! And I actually wonder why I am buying toothpaste for the kids all the time!

I found Max had claimed this pile for himself awhile back...

The kids laptop, their netbook/mini laptop and a DSi XL. Max is all into electronic things. If he could play with all things electronic at one time he would! He will often times play DS while watching TV or the computer. We tell him one thing at a time.

Back in November I won an Ipod touch from Saving Lera. I received it about a month ago. My kids LOVE it. So Max has added that to his pile he claims as his. It is fun to play with. We did not have an Itouch before (or even an Iphone, I know, :gasp:). I have an Ipod from about 3 1/2 years ago that Pete got me for Christmas. It is an ipod video and has 32 GB. It still works perfectly (knock on wood) and I use every time I am in the car, when I run (jog, really), and just whenever. It has had lots and lots of use. Pete had bought the 3 year warranty for it but we never needed it. I am hoping the Itouch is made just as well.


Hope everyone has a fun-filled Easter weekend.

Thursday, April 21, 2011

sole puke picker upper

edited to add-- yes, I really do know how to spell puke! (I had the title wrong)

Apparently that is what I am in this household. BTW, this post is about puke. Just letting you know!

Last night I got to sleep around 1:30. I went to sleep in Max's bed. Many reasons but the main reason... I pick the bed with fewest bodies! All 3 boys tend to find me during the night. If Sam and Pete are sleeping in our bed and I join in, that is 3. However, Ike usually goes to bed with the last person awake so last night that was me. He would have made 4. Then sometime during the night Max comes up....up to 5. Although I love my kids, I also love my sleep!

A little after an hour of sleep, Pete wakes me up and says Sam is puking all over the place upstairs. You do know dads are clueless when it comes to puke, right? I get up and grab some towels. Pete said, "you need more than that. It's on the carpet. You'll need carpet cleaner too." So I grab the spray bottle of carpet cleaner. Pete said, "no, the big carpet cleaner..... you'll see." I just look at him like, yeah, I'm not cleaning carpets at 3 am. I make it upstairs. My side of the bed has got puke on it. Sam also just hung her head off the bed to avoid puking on the bed. Thanks Sam! There was lots of puke on the floor there as well. I'm guessing at that time Pete was yelling at her to run to the bathroom. Unfortunately, my side of the bed is the furtherest from the bathroom. So at about the 1/2 way mark all the way to the toilet there is a nice trail of puke. The bathroom floor is sprayed with puke as well as the whole toilet.

Sam was laying in the floor on a rug, with a towel nearby. OK, so Pete was right. Wait, what did I just say?! I needed the big guns, even at 3am. I drag out the carpet cleaner and start cleaning. It came up without any problems. I guess fresh puke makes a difference!

Back to bed and so far so good. No more puke yet. I am letting her sleep in this morning and hoping nobody else gets it!

Wednesday, April 20, 2011

school projects

Before spring break Max and Joe both had a project due at school. Max a solar system and Joe a leprechaun trap.

For Max his solar system could be just about anything. I stuck with a simple poster type display.

I had Max fill in the blanks for length of day and year and how many moons each planet had. He glued everything on (with help). You can't see it in the photo but we do have an asteroid belt on there. We made it out of pea gravel and clear beads that looked like ice. The background is covered with (lots of) glitter. All the kids had to help with that, of course! He was proud of it and got an A.


Joe had to make a leprechaun trap. Could be anything. Apparently leprechauns like gold. When I mentioned to Pete Joe needed to make a leprechaun trap he suggested a plant like a Venus fly trap. Joe liked it so we went with it. Joe and I had green hands for a few days. We used paper mache that I dyed green (in hopes to skip painting it). However, we still had to paint the thing. It was messy but turned out better than I was expecting.
Here is Joe with his Venus Leprechaun trap!Joe hid one piece of gold behind a spike to really lure the leprechaun in....

His teacher said it looked just like the plant off of Little Shops of Horrors.

Tuesday, April 19, 2011

Style... Ike has it!


This is Ike all decked out... wearing snow boots, shorts, long sleeve tee carrying a flag and a balloon. What else could a boy need?

We were actually leaving at the time but I told him he had to changed shoes. The flag and balloon had to come though.

He is SO into dress up. I have a post I need to get ready for that (so watch out). Yesterday he was a pirate. Mean old mom told him he wasn't going to wal-mart all decked out. So he put clothes on top of his outfit and kept the hook with him. Many people in wal-mart said, "argh" to him!

Monday, April 18, 2011

really, it's been almost a month?

OK, So it's been awhile since I posted. I'm not that good at keeping up I guess.

The weather is getting nicer and nicer. I love spring! I'm outside just as much as I can be. I have planted several veggie plants so far and more berry bushes. Fingers cross they all spread like crazy! The rabbits were enjoying my blueberry bushes way too much so I had to make a 'rabbit fence' around all my berry plants in that area (blueberry, blackberry and raspberry). Now, I noticed my strawberry plants are slowly but surely getting eaten up. SO I need to make another trip to the hardware store. I feed the birds along with the rabbits and squirrels in hopes they would leave my other stuff alone. no such luck. However, they have not found my cabbage or parsley yet. Apparently they do not like rosemary or mint (or maybe haven't noticed it yet?).
Today though I felt sorry for the poor little rabbits.

As I walked out on the deck this morning I heard this awful, loud squeaky noise. This huge black bird had a baby rabbit in his beak sitting on the fence. Poor baby was yelling for his momma! 2 rabbits were in the yard that he pulled it from. I could see the rabbits nest was torn apart. fur everywhere. I think the rabbits moved the rest of the babies as the hole was empty a short while later (I checked). Either that or I figured the bird had eaten them all up. However, a couple hours later, I again step out on the deck and a big black bird is flying over our deck with a mouth full of baby rabbit, kicking and screaming. Poor bunnies.

Last fall I re-did a flower bed by our mailbox. I only put tulips and lilies in it. Plus one mum, which I was kinda hoping would die over winter (it didn't) plus the 'fancy' grass in one corner. Happy to say the tulips all looked great this spring!
I have tons to blog about and hoping I can play catch up for awhile but we'll see how that goes...